Chris Hayes (Fowler, Australian Labor Party) Share this | Hansard source

to move:

That this House:

(1) notes that the month of August is Spinal Muscular Atrophy (SMA) Awareness Month;

(2) further notes that:

(a) 52 Australians die each month from this rare genetic motor neuron disease;

(b) SMA is the leading genetic killer of infants under the age of two; and

(c) this debilitating disease can occur in both adults and children;

(3) expresses support for:

(a) the Spinal Muscular Atrophy Association Inc.; and

(b) all Australian families affected by this incurable disease; and

(4) calls for the Government to:

(a) lodge SMA as a keyword with the National Health and Medical Research Council;

(b) provide support for practical initiatives for those affected by SMA; and

(c) promote awareness of SMA.

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