House debates

Monday, 18 June 2012

Private Members' Business

Autism Spectrum Disorder

1:21 pm

Photo of Don RandallDon Randall (Canning, Liberal Party, Shadow Parliamentary Secretary for Local Government) Share this | Hansard source

I take the opportunity today to support the motion of the member for Flinders, Greg Hunt, with respect to autism spectrum disorders. Depending on which research you listen to and who you talk to, autism spectrum disorders are on the rise with, as the member for Bruce just said, one in 110—some say it is one in 160—Australian children diagnosed with a disorder. These figures are increasing and the disorder is becoming more and more prevalent, particularly in First World nations such as Australia. However, research has shown that with proven early intervention measures the effects of the disorder can be significantly reduced and children are even able to rejoin mainstream schooling to continue their education. As we know, the aim of all parents involved is that their child gets to a point where they can live independently at some stage in their future.

Associations such as the Autism Association of Western Australia, led by Joan McKenna Kerr, have structured their early intervention programs based on research into the most effective models of best practice. These include individual support services, highly structured and supportive environments, autism-specific content and a functional approach to behaviour management and family involvement. At this stage I would like to mention also the LEARN Foundation, which is run by Mandy Mason and her great number of supporters, which offers a choice in treatments. As I said, no one should in any way discriminate against or criticise any of the programs, other than to say that a choice and an alternative approach are always welcomed in trying to achieve the best outcome. But, as I said, this disorder is on the rise and it is essential that ongoing financial support is given to these organisations in order for them to cope with an increase in demand and the need to apply early intervention measures as early as possible.

Through the 'adopt a politician' program, five years ago I met young Dermott Barnard his family. Dermott lives with severe autism. I have witness firsthand the huge impact that this has had on his family, his mum Lynn and his Elise. Dermott's mum and sister have always had his best interests at heart, but they have found it difficult to access all of the respite and support services they need to manage Dermott's disorder. Families of children living with autism often go unrecognised and miss out on the support and the respite that they often desperately need. I have heard stories from various people within my electorate who have resorted to desperate and unhelpful measures to give themselves some immediate respite. For example, a mother told me at the door that she had sat her child in front of the front load washing machine just to have him entertained for an hour or so because she could not cope any longer. In my recent Canning Walk for Autism, I was able to raise over $22,500 for the Autism Association of Western Australia and respite services such as INKA Respite in Lake Clifton. Without these small not-for-profit respite services, many families would be feeling even more desperate and might resort to even worse actions.

It is also important to note that, whilst respite is needed for families and children living with autism, it is also essential that a large proportion of this respite be flexible. Flexibility is the key to this respite. This enables families to access respite when they need it and when they are most desperate, rather than having to book months ahead, when they do not necessarily need it. Having a national autism plan, including a forum, would provide the opportunity to discuss the issues further. The families of children such as Dermott would have a clearer idea of where to get further help, and it would provide a framework of the best intervention measures available.

With the rate of autism spectrum disorders increasing, this action is needed now more than ever. There is no doubt that these disorders should be included as part of the National Disability Insurance Scheme. As we are being positive today, I will say that the scheme is supported by this side of the House, although we do have some issues about the level of funding. I will not say anything further about that. But, if the scheme were implemented in full, it would provide a positive opportunity for families to get some relief.

I would also like to support national recognition of World Autism Day on 2 April by lighting up the exterior of Parliament House in blue. This would significantly help raise broader awareness of the disorder, as well as reaffirm the commitment of this House to providing ongoing support and services. This year, World Autism Day fell during my Walk for Autism, and I was lucky enough to be welcomed by the students of Dale Christian School for a fundraising barbecue. I was also joined by Joan McKenna Kerr and Paul Beard from the Autism Association of WA, as well as by my colleague Christopher Pyne. He came and walked with me on that day. This significant day helped bring wider awareness, and I support this motion. (Time expired)

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